Client and Carers Narratives: The Carers story

Sara Simons
University of Northampton
Patient and Public Involvement

Summary

To involve carers in the creation of an open educational resource using carers narratives of their lived experience and the impact that ill health has upon their daily lives. The resource will empower and inform a shared culture by putting the carer at the heart of the delivery of the resource (Francis, 2013) and by giving the often silent carer an opportunity to have their voice heard.

What are the Aims?

The resource will be used across interprofessional health and social care programmes and local communities to develop a better understanding of the psychological, emotional, cultural, social, economic and physical impact upon the everyday lives of carers.

Who was/is involved?

This project involved collaboration between Northampton University and the Carers Federation.

What has changed/will change?

The video will be made available as an open educational resource to give access to the widest possible audience. The resource will empower and inform a shared culture by putting the carer at the heart of the delivery of the resource.

What lessons have we learnt?

The resource has still to be piloted and evaluations of the resource will be gained from normal student evaluations of learning, some qualitative feedback from the University of Northampton School of Health Service user and Carers group and from the Carers Federation.

Contact details

Sara Simons sara.simons@northampton.ac.uk

Alison Ewing Alison.ewing@northampton.ac.uk

Links to further information and resources

The Carers Federation